Today Jacqui heard from the doctor – other
than the 3 nodules on her left lung, her PET scan was clear!!! To put this in perspective, PET scans will show up everything, including “false positives” – and if there
are any questionable “things”, they have to be tested to make sure they are of no concern before
they can get going on the real issues. This is good news!!!
Unfortunately, the nodules are still on her left lung, of
course, and so they will be talking about the next step in the sarcoma clinic
today and we expect to have another appointment at some point to talk about they type and date of surgery – note I don’t
say “soon”, because this is a waiting game.
A friend gave me a pamphlet called “Dealing
with the Frustration of Waiting during a Serious Illness” - Hmmm, I thought, now that’s something I can
relate to!! I found one paragraph very
true:
“The work of dealing with a serious disease
involves many challenges: fear, worry,
pain and discomfort, stress and occasional frustration. One experience, though, is constant in the
journey through illness: waiting.”
Sometimes when I feel tired of waiting or
have had a lot of questions from others, I feel like I’m doing something wrong, that
I need to be on someone’s case to get things going – but I have to remind
myself that this is normal, it’s part of the process – it’s actually very
humbling to have to surrender control of your daughter’s well-being to someone
else, but…
In the meantime, Jacqui is loving her new job
and is glad she has been able to keep busy these last few weeks. It really makes me feel so much lighter (and
I think I can speak for Peter and Tyler too) to see her taking on this
challenge and enjoying herself so much in the middle of so much uncertainty.
Thank you all so much for your continued
support – in so many wonderful ways - we appreciate this so much. And
now we’re back to waiting again…..
Surrender
- it isn't easy in little or big things. We are lucky to have accepted the
choice to do so.
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